Scoping Review of Experience of People living with Inherited Cardiac Conditions and Congenital Heart Disease: The experience of individuals with inherited cardiac conditions and congenital heart disease and their families throughout the life course: impact, difficulties and resilience

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dc.contributor.author Burns, A.
dc.contributor.author Hickey, A.
dc.contributor.author Doyle, F.
dc.date.accessioned 2021-10-21T09:32:00Z
dc.date.available 2021-10-21T09:32:00Z
dc.date.issued 2015
dc.description There is virtually no Irish research on inherited cardiac conditions and congenital heart disease and the literature on inherited cardiac conditions is in general limited. Many areas of interest in relation to the social consequences, psychological experiences and quality of life associated with inherited cardiac conditions could not be addressed by this review as they simply have not yet been addressed in the literature itself. These knowledge gaps highlight the need for further research in this area.
dc.description.abstract This was a scoping review of the experiences of people with inherited cardiac conditions and congenital heart disease and their families. The Irish Heart Foundation is trying to investigate the issues which these individuals and their families might face throughout the life course. It is hoped that this scoping review will highlight current knowledge, inform potential future studies and also inform the supports provided by the IHF to people with inherited cardiac conditions and their families.
dc.identifier.citation Burns, Annette; Hickey, Anne; Doyle, Frank (2015): Scoping Review of Experience of People living with Inherited Cardiac Conditions and Congenital Heart Disease. The experience of individuals with inherited cardiac conditions and congenital heart disease and their families throughout the life course: impact, difficulties and resilience. Royal College of Surgeons in Ireland. Report. https://doi.org/10.25419/rcsi.10770977.v1
dc.identifier.uri https://repository.rcsi.com/articles/report/Scoping_Review_of_Experience_of_People_living_with_Inherited_Cardiac_Conditions_and_Congenital_Heart_Disease_The_experience_of_individuals_with_inherited_cardiac_conditions_and_congenital_heart_disease_and_their_families_throughout_the_life/10770977
dc.identifier.uri https://www.iphrepository.com/handle/123456789/18
dc.language.iso en
dc.publisher Irish Heart Foundation
dc.subject Heart Disease
dc.subject Inherited
dc.subject Cardiac condition
dc.title Scoping Review of Experience of People living with Inherited Cardiac Conditions and Congenital Heart Disease: The experience of individuals with inherited cardiac conditions and congenital heart disease and their families throughout the life course: impact, difficulties and resilience
dc.type Article
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